By james art 
Alex’s mother, Annie, said: “Sometimes people see the wheelchair and think he’s less intelligent or less capable.
“They may show too much pity, which is not helpful. Alex is very capable and independent. It’s important that people recognize that.”
Annie, who stressed the importance of automatic doors and “proper accessibility”, said there needed to be more information about the condition to help people understand what it was.
She added: “I often feel very bad and I wish I could take all his hardships away. But the hospital staff are wonderful and always do the right thing. They offer so much support.
“I can’t wait to see what Alex does when he grows up, he loves science and drama. He is very knowledgeable and has a great sense of humor – a natural comedian.”
Mr. Desiderio Rodríguez, consultant and head of clinical services in the hospital’s neurosurgery department, operated on Alex when he was a baby.
He said: “Alex reminds me that superheroes live on in the hearts of our children who fight big battles. He showed us all that he is a true superhero.
“He is an inspiration to all, taking everything life has to offer in his stride. He always has a big, beaming smile, even in times of trouble.”